Three years ago, Steve was diagnosed with Alzheimer’s disease. He had to give up his job as a software designer, but his wife Joni says the cruelest part is the toll it’s taking on the music he composed.
“Losing the songs would be like losing him,” she said.
A part of Alzheimer’s we don’t often discuss – the loss of “self”. It’s not just about forgetting the little things like daily activities or even the big things like recognizing family & friends. It’s also about losing what has made us “us” – our unique, personal identity.
It feels as though Alzheimer’s steals from us the very things that make life worth living, as if it eats away at our soul piece by piece and leaves an empty shell.